Have tried to 'write' but things are difficult just now......and the results not what I wanted to hear.
I did go into Hospital on the 8th June, had to be there for 7.00am, and I was first to Theatre. I was told I would be fifth, so with the change, had to rush to get into Gown etc....then off to theatre. I was unusually calm, thinking this is going to clear the problems, and give me some relief. When I came round I had a very sore Throat/Tongue, and stitches in the Throat. The Consultant came to the Ward in the Evening, and stated that 'they hadn't removed any Tumours' everything else he said after that just washed over me. I was home the next day, and after the Anaesthetic wore off, was really unwell. Was very sick, and it even hurt to swallow Water.Had to do a lot of this, because of various Medication including Diabetes. My own surgery is considering putting me on Insulin, but waiting until I 'get over this' first I lost 11lbs in 6 days, not a good way to lose it though! Allan and I communicated by Mobile phone, from Bedroom to Living room, me ringing and ringing off, as I could barely speak. My voice hasn't come back fully as yet.
What kept me going was the thought that it's over, and they didn't find anything untoward. I've had this sore throat plus all the other conditions associated with Pemphigoid for over 4yrs, and attended Hospital since September 2007.
Anyhow, I went for 'results' on the 13th July,also have to go to collect Prescription. My own Dr will not prescribe this medication, as it is very specialised, and expensive.
I had two appointments, the usual clinic 'upstairs', and then on to see the Consultant Surgeon 'downstairs'.
We were called in to a different room than usual, and the procedure wasn't the same, and no examination at this point.
I was told that I had Epithelial Dysplasia, mild in some areas of tongue etc, moderate in others but severe at the back of the Throat. The severe part of it is Cancer in situ. I do not have malignant Cancer, but that is the next stage. I am to have Laser surgery,don't have a choice, and it should be done in a couple of weeks time.Also, I will have to go to Clinic every month thereafter, and for the rest of my life. We then were ushered downstairs, and I jumped the queue, as I was next to be called in, and saw yet another Consultant as mine was on Holiday. Things were explained to me, and he asked me to promise not to 'look things up' but I didn't agree to that.....
I also have another problem tooth, have tried to see my Dentist recently, go tomorrow 19th. But, if it is still intact when I go into Hospital, they will remove it while I am asleep.
Sorry for the gloomy entry, but I am so down just now......and have put off writing.
Hope it's not TMI
