Sunday, 18 July 2010

Another update

Sorry for lack of information re my recent Biopsies

Have tried to 'write' but things are difficult just now......and the results not what I wanted to hear.

I did go into Hospital on the 8th June, had to be there for 7.00am, and I was first to Theatre. I was told I would be fifth, so with the change, had to rush to get into Gown etc....then off to theatre. I was unusually calm, thinking this is going to clear the problems, and give me some relief. When I came round I had a very sore Throat/Tongue, and stitches in the Throat. The Consultant came to the Ward in the Evening, and stated that 'they hadn't removed any Tumours' everything else he said after that just washed over me. I was home the next day, and after the Anaesthetic wore off, was really unwell. Was very sick, and it even hurt to swallow Water.Had to do a lot of this, because of various Medication including Diabetes. My own surgery is considering putting me on Insulin, but waiting until I 'get over this' first I lost 11lbs in 6 days, not a good way to lose it though! Allan and I communicated by Mobile phone, from Bedroom to Living room, me ringing and ringing off, as I could barely speak. My voice hasn't come back fully as yet.

What kept me going was the thought that it's over, and they didn't find anything untoward. I've had this sore throat plus all the other conditions associated with Pemphigoid for over 4yrs, and attended Hospital since September 2007.

Anyhow, I went for 'results' on the 13th July,also have to go to collect Prescription. My own Dr will not prescribe this medication, as it is very specialised, and expensive.

I had two appointments, the usual clinic 'upstairs', and then on to see the Consultant Surgeon 'downstairs'.

We were called in to a different room than usual, and the procedure wasn't the same, and no examination at this point.

I was told that I had Epithelial Dysplasia, mild in some areas of tongue etc, moderate in others but severe at the back of the Throat. The severe part of it is Cancer in situ. I do not have malignant Cancer, but that is the next stage. I am to have Laser surgery,don't have a choice, and it should be done in a couple of weeks time.Also, I will have to go to Clinic every month thereafter, and for the rest of my life. We then were ushered downstairs, and I jumped the queue, as I was next to be called in, and saw yet another Consultant as mine was on Holiday. Things were explained to me, and he asked me to promise not to 'look things up' but I didn't agree to that.....

I also have another problem tooth, have tried to see my Dentist recently, go tomorrow 19th. But, if it is still intact when I go into Hospital, they will remove it while I am asleep.

Sorry for the gloomy entry, but I am so down just now......and have put off writing.
Hope it's not TMI


  1. Awww Aileen! I am so sorry you have been knocked back down again! What rotten news for you. As if you haven't enough to contend with my friend.
    It can't be nice either to be reminded about it each time you have to swallow. I hope the effects of your biopsy are wearing off as I write. I will keep you in my prayers and hope that you will have a good prognosis after the laser treatment.
    Does sucking ice-cubes help a bit? Just a thought.
    Meanwhile chin up. Don't let it get you too down. Pour it all out to yur friends on Blogger. We will be here for you.
    You can and you will cope with all this.
    Take care....much love
    Jeanie xxxx


  3. Hi Dear Aileen ,gosh what an awful ordeal ,they certainly put you thorough the mill ,I do hope you are feeling abit better ,and will improve day by day Jan xx

  4. Oh Aileen, I am so glad you commented on my journal because I did not have a link to yours and was not aware you are still writing. I am so sorry you are having to go through all that you are. You will be in my thoughts and prayers.

  5. P.S. When you post, can you drop me a little email to say so as there is nowhere on your blog where I can add myself as a follower. Thank you.

  6. Hello Aileen
    So sorry to hear of your plight, you are certainly in the wars aren't you. I can understand you being strong and feeling down. Try and think of nice things to keep your spirits up. My thoughts are with you.
    Big Luv
    Jaynee X

  7. Oh Aileen,I am so very sorry to hear this.
    May God hear my prayers and help you through this.
    Take care of you,my friend.
    ❤❤ HUGS❤❤

  8. Thanks for your visit and nice comment.
    Hope you are doing better now.
    Still in my prayers.


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