It's nice to have the support of fellow bloggers, and welcome the new followers.....
After the recent news, things are moving along quite quickly now, but feel there have been previous delays along the way. But, as people keep pointing out to me, Mouth cancer is difficult to diagnose, until it reaches a certain stage, also the Pemphigoid mirrors a lot of the symptoms, and I have had that for over 4years. I did mention in my last Post that I was having a dental checkup, which resulted in some teeth being removed, due to the upcoming Radiology. I was upset over this, but it was deemed necessary. I will not go into all the medical details, but it was explained to me, and if I hadn't agreed, may have become difficult later with infections etc.
Things are moving pretty quickly now, I have had the 'head shield' made, and it takes two visits, which were last Wednesday, and again on Friday. You then go on a simulator, and the precise areas are marked out. Because of the area being treated,the Radiation isn't painful, but it's the effects of it.... I'm having a PEG tube fitted into my stomach, as swallowing will probably become difficult over time, and I'm also Diabetic.
I'm going into Hospital in the morning, so this is a bit rushed....not looking forward to this procedure at all, and I will be awake, but sedated....hopefully, only in for one night.
The Radiology starts on the 8th August, Allan is on holiday from work, for two weeks so that holiday will be taking me daily for treatment. he has two weeks, and usually goes on his own into the mountains for the second week. Would you believe, he was going to Norway, and has just renewed his passport.
We have been given a list of appointments, 35 of them in all finishing on the 23rd September.....
*Other news.....I mentioned earlier that Allan's Mum was having heart surgery (8th July), and thank you so much for your good wishes for her, it didn't happen then, and was actually delayed twice, even went in, and sent home, not enough staff!
BUT, she had surgery last Tuesday (19th), and is doing reasonably well.
Must get off to Bed now, as early start in the morning....
Thank you for taking the time to read and comment.....I'll update when I can.....
good to read your post..I've been thinking about you every day...best wishes to Allan and his Mum and my love to you...
ReplyDeleteLyn (still can't comment only as annoymous)
Seems many cannot comment only annonymous Haileen.I am saying prayers all those appointments go well,prayers too for Allans Mum and I too as lyn states have wondered how you were.I hope you got my two letters and card I sent you.I do understand you ahve so much on and not much time.Plkease take Care youare so brave.God Bless you.LOve Kath xx
ReplyDeleteHi Aileen, I've only just discovered your blog, but will follow your updates closely from now on. I run a blog called "Call for Support", on which blogs are highlighted whose writers are deserving of moral support - and you certainly are. I wish you every strength in continuing your valiant battle against cancer, and look forward to reading your postings.
ReplyDeleteGuido
http://call-for-support.blogspot.com/
(Own blog: http://atlantic-lines.blogspot.com/)
I'm on Facebook on http://www.facebook.com/adb45
we don't know each other, but guido posted your blog link on CALL FOR SUPPORT on facebook and i thought i would come over and offer my prayers and well wishes for you during this difficult time. just know that many out there you will never meet or even hear from personally are pulling for you. ♥♥♥♥♥
ReplyDeleteHi Aileen,
ReplyDeletesame as above, we don't know eachother I came over via Guido. Just wanted to wish you the best.. and to let you know that you'll be in prayers.. Praying that your appointments go well.. also wishing you strength in your battle to beat this beast..
Kelly~
May God be with you and heal your body and make you as good as new. I haven't been able to comment. Maybe this time it will go through. I came via Guido and Call For Support. Helen
ReplyDeletegood luck,best wishes mort, i do follow but guido asked us to call round.its what call for support is all about.we do care.
ReplyDeleteI pray that God allows you to bare your pain with some civility and peace. My wife died on April 9th of this year and I had to rely on the Lord BIG TIME! I just had Left knee replacement surgery too, so I am no stranger to pain. tschuckman@aol.com --Wisconsin-- Disabled Vietnam Veteran: 68-70. --Tommy Schuckman--
ReplyDeleteOh Aileen-I am so terribly sorry you are going through this. I'll say prayers for you. Please know that I wish you well. Many HUGS...
ReplyDeleteI'm keeping you in my thoughts and prayers..it is not easy to go through this. Please know that you have a lot of folks praying for you...
ReplyDeleteKeeping you in thought and prayer as you go through this difficult time. -- Kathy
ReplyDeleteI'm sorry for what you are going through. I can relate as I am going thru treatment for breast cancer right now. I will keep you in my prayers. Linda
ReplyDeleteI'm so, so sorry to hear about this Aileen. I'm sorry I haven't been around the blogs lately, I haven't updated in over a year. Bless Allan for looking after you, he's always been such a great support to you since all your health problems began. I'm thinking of you and praying that the cancer can be stopped from spreading, you've been through too much already. Jeannette xxxx
ReplyDeletewhen it comes to journals we ex aol'ers are a pack of support !! Guido sent me also...sending my prayers and support for a complete full recovery! xo
ReplyDeleteGuido sent me here too. As Rose just said, my new friend, we ex-aol'ers pack a lot of support. I will be praying for you and will put you on every prayer list I have. You are one courageous lady.
ReplyDeleteI pray that each day you will more and more experience the warmth of God's love and the tightness of His embrace
Hi Aileen, I have come via blog support, Just to let you know that all of us in blog land will have you in our prayers in the comning days and weeks. It is not a nice thing to be thinking about but I am sure you will have the support of family and friends and that makes such a difference.
ReplyDeleteLove from Sybil in Wiltshire
(http://sybil-dayintheifeofsybs.blogspot.co)
I used to see those head masks when I was having my own radiotherapy for breast cancer. My friend I pray that all goes smoothly for you and that you will respond quickly to the treatment and the cancer is completely destroyed. You will be in my prayers. Update us when you can my friend.
ReplyDeleteThanks for your comment on my blog, Aileen. I do hope you get through the radiotherapy without too many problems. My best wishes and prayers.
ReplyDeleteAileen..I just wanted to check on you..see how things are going for you...let us know how you are doing when you get a chance..you have been in my prayers...
ReplyDeleteHi Aileen I have sent you an e. mail today.Prayers you are doing better.Thought I would write in here too,in case the e. mail got side tracked, as I am having computer probs and using Firefox just now, which I am not so used to yet.Keep that fighting spirit up love and I hope all the family are well too.Regards to Allan.Take Care God Bless Kath xx
ReplyDeleteHello once again Aileen,I know you are ill and I do not expect a reply at all,but I just wanted to say I am still thinking of you and praying hard.I hope you got my card and when ever you get my messages you are feeling a little better.Please know youand yours, will always be in my prayers.Take Care God Bless Kath xx
ReplyDeleteHello Again Aileen,another month has passed with no news as yet.I am praying and hopeing when I do hear anything it is good news.Just to let you know I think of you daily and I wish I could hear some news.My prayers for you and yours always.Regards to Allen and I hope his family are well too.Take Care God Bless{{{Hugs}}} Kath xx
ReplyDeleteStill praying for you Aileen, just hoping that you are still doing well. With much love Jeannette xxxx
ReplyDelete