Trying to cope with the latest news, an update as promised.
Did have the biopsies on the 28th......overnight stay. It was my 5th in 12 months. Was told, that the ENT People were in the theatre next door to where I was having Surgery, so both were going to 'take a look'. The Consultants came round next day, and was informed they had found a 'thickening' at the base of the tongue. A specialist Nurse came to see me also, she gave me her card with 'phone number, and her email address.
Was discharged on the 29th, but within 15 mins of getting home, this Nurse phoned, and said they were trying to get the results of the Biopsies by Monday 4th July, and to be at the Clinic, unless I heard from them.
I was called in to the Clinic, and was met with several Consultants, who shook my hand , and introduced themselves. Was asked question after question, about the Pemphigoid, which I have had for over 5yrs. then this Consultant started talking in depth, stating he was fron Weston Park....which is the Sheffield Cancer Hospital.
He didn't beat about the bush, stating that I had Cancer which was inoperable, they would have to remove the Tongue,Voicebox etc., and I wouldn't survive the Operation. (Sorry if it's too much information) I'm unable to have Chemotherapy, because of the condition I already have (Immune System).I asked 'how long'...if i didn't have the suggested treatment, was told a matter of months, and I would become so very unwell, with glands swelling etc...... I'm to have 7 weeks of Radiotherapy, 5 days a week, with weekends free. I will become very unwell, unable to eat etc. so I am having a PEG fitted in my stomach, and a 'Mask' will be made for my Radiation treatment.I will visit each day, unless I become too unwell to be at Home.This is a bit rushed, as I have to be at the Dental Hospital this afternoon, for teeth to be checked out,before Radiation can start. It all should be taking place within the next 2/3 weeks. I am frightened because the side effects of Radiation, soreness,sickness, and eventual PAIN. I am uncomfortable everyday to some degree, so don't know how I will cope, but so many have before me, and will after me.
We are in shock just now, so this is just a brief update, to anyone who still follows my Blog.
Along with all this Allan's Mum is in Hospital, having a triple Heart Bypass on 8th July.....a lot for him to cope with just now.
Allan will probably 'move in' with me for a while, as the treatment starts.....
Thanks for taking the time to read, and will update soon...