Sunday, 7 February 2010

Not a lot of people know that!

Well, where to start. I'm not around so much these days, and only rarely comment. I joined AOL Journals on 18th November 2005....(so would have been 4yrs) However I fell down a flight of stairs at home on the 25th, one week later, my house is on three levels. Struggled with so many things at that time. Have had Diabetes since 2001, and fellow sufferers will know the problems. Started with a sore throat in January 2006,ulcers in the mouth, nosebleeds (one lasting 7hrs and was admitted to Hospital),repeated Conjunctivitis, and ulcers in the Vulva. It took until September 2007, and an Eye operation, to diagnose the 'problem' Cicatricial Pemphigoid (the cicatrical part of it is in the eyes.) It is a rare condition....1 in 1.million. You don't die from it, but can from the complications. I visit 2 hospitals on a regular basis, and treated with tablets that are given to transplant patients. It is my own Immune System that is the problem. As we all transferred to Blogger, I hoped I may hear from someone with the condition. It has been an eventful 4yrs, and I've coped with Allan's help. Outwardly, most of the time I look reasonable, but somedays it takes it's toll. I have a problem in my mouth at the moment, a lump started on my Gum above a front tooth, my own Dentist gave me Antibiotics, saw the Dental hospital in January, was given another course of the same Antibiotics for 7 days, no change, now had two Xrays, and they are removing my two Front teeth on Wednesday 10th February.They will be placed on a Bridge, and placed immediately... no one will be aware, but I will, and absolutely dreading it! If the lump remains they are going to do a Biopsy at a later date.the teeth aren't bad, it is because of bone loss.

Allan was made Redundant at Christmas, and we have had that to cope with, but he doesn't complain much. I'm Retired anyhow, but I wouldn't be able to hold a job down, as you never know what the Day will bring.

If anyone is still reading, I never felt quite at Home with Journals, and less so with Blogger. but have made one or two Friends.

I'm not good at 'baring all',and can't write about everything that happens in my life, too much going on, and not all bad, but tonight I felt I needed to explain somethings...don't even know


Something happened on AOL Journals, that threw me, and made me not want to participate., hence the long gap between posts, along with the ill health.....Someone, who wil be nameless,(American) wrote to me out of the blue, always commented, emailed, and even wrote me a Poem, found her a bit 'wacky' at times. Never mentioned Journaling in her own right........then found ,purely by accident, that she had kept a Journal for around 4 months. I'm sorry but that made me feel 'insecure' about 'cyberfriends'. she had quite a few followers, and came across as a really nice person, but she failed miserably in my eyes, or is it just me?

*Shows how rusty I am....The Signature should be at the botttom!


  1. Hi Aileen,it's good to read a post from you again.I am so sorry you are having so many problems with your health,it does take it's toll after such a long time.Sorry also about Allan thats hard too, I do understand,Roosters workforce are making many redundancies and it's a very worrying time..As for the cyberfriend,I had a similar experiance and it gives you a knock I must admit.Put me off for quite a while.Strange you have posted today,I was going to put a comment in your blog this morning asking if everything was ok with you.I do go round the board to the ones missing every now and again and leave a few words.I will be praying for you Wednesday,I hope all goes well.Look after yourself.Try keep strong God Is Good.Take Care God Bless Kath xx

  2. Hello Aieen

    It's lovely to hear from you again. I'm sorry that life has dealt you such a tough deal and I so wish that something could be done to allieviate this disease you have once and for all.
    Everybody needs to offload from time to time and if you can't do it amongst good friends then where can you?
    I'm so sorry that you felt let down by your American friend.
    I suppose we can't always see into people's hearts when we are contacting each other through cyber space. We just have to hope that they are honest and true.
    I'm glad you haven't been put off altogether and you are now able to enjoy the fact that you can come back and communicate with those of us who care.
    Sorry to hear about loosing your teeth in this way. I had to have a front tooth out before my chemo began and I was more upset about that than having the chemo. The chemo would come and go but the gap would go on forever. lol
    Chin up my friend. Onwards and upwards for your own sake.
    Gentle hug

    Jeanie xxxxx

  3. Having online friends is easier for me than having to deal with people in 'real life', with me being quite a shy and quiet person. I've been lucky with the people that I have met through blogging, especially of course my Mr B :o) There are always the not so nice people out there though m'dear, so your probably right to be a little wary.

    ((( hugs ))) for you... so much going on in your life m'dear.


  4. Hello Ailleen,
    Good to read a posting from you.I am certain I did a comment on this posting yesterday.Just by chance I ran through them all that posted yesterday again just now, as I wasn't too well myself this weekend and found no comment from me here.So I thought I best do another one.I am sorry you have not been well again and what a nightmare it is with your mouth.I pray you do not have too much pain from the extractions and all goes well in the future.I know how Allan must feel too.Roosters workforce are making redundancies shortly and it's the not knowing that is so frustrating who are the ones to go.As for the incident you hadwith the cyberfriend,I had a similar thing happen to me,thats why I was going to give up,but I was persuaded not to by the other good many friends on here.I hope you are staying warm,hasn't it been bitter cold Brrr.More snow predicted for us in our areas this week.Keep your chin up love and prayers for you always.Regards to Allan and I hope he can soon find other employment.Take Care God Bless Kath xx

  5. It's good to see a post Aileen! I hope the appointment for Wednesday goes well, I'll be thinking of you. We never know who we're talking to online, I'm sorry you had a bad experience, I can see that it would make you wary. Jeannette xx

  6. Just a little late message Tuesday evening (no e. mail addy) Aileen to say prayers for tomorrow for you love for the dental treatment.I hope evrything goes well for you.I'll be thinking of you.Take Care God Bless Kath xx

  7. I've just popped in to wish you well today Aileen.
    All the best!
    Much love
    Jeanie xxx



  9. Hello
    How nice to see a post from you and how sorry i am to hear of more health problems you are having. You will have had your dental treatment by now, i hope it went well and you are not feeling too sore.
    Its all very well having 'online'friends but it is not quite the same as having 'real' friends. We have all heard some terrible stories about the internet, you have to be very careful. Having said that there are so many nice genuine people out there.
    Take care,
    Big Luv
    Jaynee X

  10. I think we all have a story or two of disenchantment through the journal/blogging world. So many times I've thought about calling it quits.Lord knows I spend way too much time playing on here.
    Sure hope you're doing okay now after the teeth removal..and your biopsy comes back with good word.
    Take Care


  11. Dropping by to let you know I was thinking of you and hope all went well and you're doing ok.



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